Hope NOW For ALS News!
Here you will find all the updates we post for our supporters. Click the title to read the entire update.
Dear supporters, We have some exciting news to report! As you may recall, Hope NOW (HNFA) met with the FDA for the fourth time in late August and proposed a clinical … Continue reading Latest From HNFA
In Phase 1 trials, healthy people, often students, are offered money to test new drugs for safety. In a Phase 2 trial, people with the targeted disease are enrolled and … Continue reading Terminally Ill Denied Treatment – that Healthy People are Paid to Try
1) Call to Action (details below) 2) Hope NOW will be issuing a new CHANGE.ORG petition that focuses on our current goals. Please watch for it in your email: “Terminally … Continue reading No Accelerated Approvals (AAP) for ALS!
ALS is a progressive neurological disorder that has always resulted in progressive deterioration and death. There is no cure and the only approved treatment extends life on average 2-3 months. … Continue reading Hope Now for ALS – 21st Century Trial Design original proposal to FDA
Taking page from early AIDS activists, ALS patients push for access to experimental drug Ron Leuty Reporter- San Francisco Business Times A one-time tech security specialist, “Mike” now calls himself an … Continue reading Hope Now for ALS in the news!
Dear Hope Now for ALS (HNFA) supporters, We apologize for the delayed update. We have been trying to schedule the next meeting so we could report that in this update. … Continue reading Hope Now for ALS update: Summary of July 6th call
The complex world of compassionate use drugs and who gets access to them. JENN MCNARY KNOWS ANGER. It has overcome her often, and with the ravaging might that only a … Continue reading Sick kids, desperate parents, and the battle for experimental drugs
Dear supporters of Hope NOW for ALS, Please email Congress before Friday to ask for their continued support. Due to the upcoming recess, this week is our only opportunity to … Continue reading Please Email Congress Before Friday, July 6
On May 12th, fifteen members of the ALS patient community met with senior FDA management to discuss expedited development and approval of new therapies for ALS. The key FDA persons … Continue reading Meeting with the FDA